I believe we can restore and support one another by sharing our beautiful, yet sometimes painful stories with each other. I know what it feels like to live with pain on the inside but look fine on the outside, and I’ve struggled with it since 2013. I was diagnosed with Devic’s disease (NMO) in 2019 after they found five brain lesions and optical neuritis and was diagnosed with lupus in 2013.

This was my longest stay at a hospital in 2019 during my 2nd relapse of what they finally diagnosed as NMO. I’m grateful for good doctors and nurses. Also, it was the first time I had taken Ativan– my hallucinations were hilarious.

The summer before my diagnosis in October, I had lost sight in my left eye, was throwing up everyday, couldn’t eat, and had a migraine for close to two months. They couldn’t find anything wrong with me. When October hit a couple months later, I lost vision in my right eye and had extreme head pain. That’s when all my MRI scans showed brain lesions and optic neuritis.

Taking matters into my own hands.

In 2019, I thought – somethings gotta give. I was so tired of being sick all the time so I changed my lifestyle. You can read that story here.

The sole reason for changing my way of eating and living is simple. I was forced to change for the better when I was diagnosed with a rare disease that affects my central nervous system. My choice of lifestyle is a result of being scared to death that I would become permanently blind or disabled, and my story goes from there.

The benefits from healthy living have restored my body. I rarely get headaches, body discomfort, and fatigue. I have gained energy and happiness. And though I can’t control my diagnosis, I can control what I feed and put on my body!

I’m on a journey of fighting for my health every day, and I want to tell the world that though we can’t control illness,, we can control what we feed our bodies. And even if it helps in some small way, we have the power.

Friend, I’m so glad you and I are here, because we are stronger together. I look forward to hearing your story.

64 thoughts on “Rare Disease Patient Turned Clean-Living Enthusiast

  1. Hey Savannah…
    The scripture that you have put on your blog, Jeremiah 29:11 is for you. God has great plans for you. Plans to prosper you and to give you an EXPECTED END! I stand with you in prayer and stand in agreement with you. You are healed! As you have declared so it is. Our God is great and mighty and nothing is impossible for Him! Savannah, the calling God has for your life is just beginning. It is just the begginning! The enemy may try to stop you but God is with you. He can be trusted.He will not abandon you.


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s